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《The Boy Whose Skin Fell Off》/原名:《》上映日期：2004,暂无A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest ...《The Boy Whose Skin Fell Off》百度云网盘资源以及《The Boy Whose Skin Fell Off》高清mp4迅雷下载，《The Boy Whose Skin Fell Off》BT下载，希望您能喜欢！
这是一部用一个小时就能看完，却大概一生也摆脱不掉的纪录片。那种阴影远远不止于视觉的不安和心理的恐惧。我们的生命会，也本该因为世间存在这样的苦痛而变得沉重一些，脆弱一些。